The 20 Best Familial Porencephaly Doctors Near Me in Grand Rapids, MI

Find the Top Familial Porencephaly Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 30 doctor with experience in Familial Porencephaly near Grand Rapids, MI. Of these, 23 are Experienced and 7 are Advanced.

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30 providers found
    Advanced in Familial Porencephaly
    General Surgery
    Advanced in Familial Porencephaly
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Casey Madura is a General Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Madura is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation Type 2, Chiari Malformation, Chiari Malformation Type 1, Hydrocephalus, and Craniectomy. Dr. Madura is board certified in American Board Of Neurological Surgery.

    Advanced in Familial Porencephaly
    General Surgery
    Advanced in Familial Porencephaly
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English

    Marian Bercu is a General Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 16 years. Dr. Bercu is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Dandy-Walker Syndrome, Syringomyelia, Chiari Malformation Type 2, Syringobulbia, and Deep Brain Stimulation.

    Advanced in Familial Porencephaly
    General Surgery
    Advanced in Familial Porencephaly
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Petronio is a General Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 42 years. Dr. Petronio is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation, Chiari Malformation Type 1, Brain Herniation, Hydrocephalus, and Craniectomy. Dr. Petronio is board certified in American Board Of Neurological Surgery. Dr. Petronio is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Familial Porencephaly
    Neurosurgery
    Experienced in Familial Porencephaly
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English
    Accepting New Patients

    Todd Vitaz is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 31 years. Dr. Vitaz is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is board certified in American Board Of Neurological Surgery. Dr. Vitaz is currently accepting new patients.

    Experienced in Familial Porencephaly
    Neurosurgery | General Surgery
    Experienced in Familial Porencephaly
    Neurosurgery | General Surgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients

    Sanjay Patra is a General Surgeon and a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 21 years. Dr. Patra is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, Subdural Hematoma, Deep Brain Stimulation, and Awake Craniotomy. Dr. Patra is board certified in American Board Of Neurological Surgery. Dr. Patra is currently accepting new patients.

    Experienced in Familial Porencephaly
    Neurosurgery
    Experienced in Familial Porencephaly
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients

    Paul Mazaris is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 19 years. Dr. Mazaris is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Stroke, Subdural Hematoma, Thrombectomy, and Stent Placement. Dr. Mazaris is board certified in American Board Of Neurological Surgery. Dr. Mazaris is currently accepting new patients.

    Experienced in Familial Porencephaly
    Neurosurgery
    Experienced in Familial Porencephaly
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    11+ years
    Languages Spoken:
    English
    Accepting New Patients

    Mohamed Somji is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 11 years. Dr. Somji is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Brain Aneurysm, Stroke, Arteriovenous Malformation, Stent Placement, and Transmyocardial Revascularization. Dr. Somji is board certified in Royal College Of Physicians And Surgeons Of Canada. Dr. Somji is currently accepting new patients.

    Experienced in Familial Porencephaly
    Pediatric Neurology
    Experienced in Familial Porencephaly
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jena Krueger is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 16 years. Dr. Krueger is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2. Dr. Krueger is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2017 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2015. Dr. Krueger is currently accepting new patients.

    Experienced in Familial Porencephaly
    Neurosurgery
    Experienced in Familial Porencephaly
    Neurosurgery

    Trinity Health Medical Group, Neurosurgery - Cherry

    245 Cherry Street Southeast, Suite 300, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Entwistle is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 16 years. Dr. Entwistle is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Stroke, Subarachnoid Hemorrhage, Stent Placement, and Transmyocardial Revascularization. Dr. Entwistle is board certified in American Osteopathic Board Of Surgery. Dr. Entwistle is currently accepting new patients.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Saint Mary's Health Services

    200 Jefferson Ave SE, 
    Grand Rapids, MI 
     (1.0 miles away)
    Languages Spoken:
    English

    Mario Orsini is a Radiologist practicing medicine in Grand Rapids, Michigan. Dr. Orsini is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Bronchogenic Cyst, Pleural Effusion, and Osteopenia.

    Experienced in Familial Porencephaly
    Neuroradiology
    Experienced in Familial Porencephaly
    Neuroradiology

    Saint Mary's Health Services

    200 Jefferson Ave SE, 
    Grand Rapids, MI 
     (1.0 miles away)
    Languages Spoken:
    English

    Kevin Gostenik is a Neuroradiologist practicing medicine in Grand Rapids, Michigan. Dr. Gostenik is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Osteopenia, Melorheostosis with Osteopoikilosis, Melorheostosis, and Ureterocele.

    Experienced in Familial Porencephaly
    Neuroradiology
    Experienced in Familial Porencephaly
    Neuroradiology

    Saint Mary's Health Services

    200 Jefferson Ave SE, 
    Grand Rapids, MI 
     (1.0 miles away)
    Languages Spoken:
    English

    Daniel Spear is a Neuroradiologist practicing medicine in Grand Rapids, Michigan. Dr. Spear is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Progressive Familial Intrahepatic Cholestasis Type 3, Progressive Familial Intrahepatic Cholestasis Type 2, Progressive Familial Intrahepatic Cholestasis Type 1, and Visceromegaly.

    Advanced in Familial Porencephaly
    Advanced in Familial Porencephaly

    Great Lakes Neurosurgical Associates - Grand Rapids

    3350 Eagle Park Drive Northeast, Suite 102, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    28+ years
    Languages Spoken:
    English
    Accepting New Patients

    Bryan Figueroa is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 28 years. Dr. Figueroa is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 58 other conditions, according to our data. His clinical expertise encompasses Pituitary Tumor, Brain Aneurysm, Dysembryoplastic Neuroepithelial Tumors (DNET), Awake Craniotomy, and Septoplasty. Dr. Figueroa is board certified in American Board Of Neurological Surgery. Dr. Figueroa is currently accepting new patients.

    Advanced in Familial Porencephaly
    Pediatric Radiology | Radiology
    Advanced in Familial Porencephaly
    Pediatric Radiology | Radiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English

    Ashok Ramachandra is a Pediatric Radiologist and a Radiologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 15 years. Dr. Ramachandra is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Lhermitte-Duclos Disease, Focal or Multifocal Malformations in Neuronal Migration, and Subcortical Band Heterotopia. Dr. Ramachandra is board certified in American Board Of Radiology and American Board Of Radiology.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English

    Rolf Hollstein is a Radiologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Hollstein is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Aseptic and Alopecic Nodules of Scalp (AANS), CAPOS Syndrome, Vertigo, and Subarachnoid Hemorrhage. Dr. Hollstein is board certified in American Board Of Radiology.

    Experienced in Familial Porencephaly
    Radiology | Neuroradiology
    Experienced in Familial Porencephaly
    Radiology | Neuroradiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Andrew Nash is a Radiologist and a Neuroradiologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Nash is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses CAPOS Syndrome, Subarachnoid Hemorrhage, Herniated Disk, and Cerebral Arteriovenous Malformation. Dr. Nash is board certified in American Board Of Radiology and American Board Of Radiology.

    Experienced in Familial Porencephaly
    Neuroradiology | Radiology
    Experienced in Familial Porencephaly
    Neuroradiology | Radiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English

    Andreea Moore is a Radiologist and a Neuroradiologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 15 years. Dr. Moore is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses CAPOS Syndrome, Headache, Subarachnoid Hemorrhage, and Familial Porencephaly. Dr. Moore is board certified in American Board Of Radiology and American Board Of Radiology.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    33+ years
    Languages Spoken:
    English

    Angelo Porcari is a Radiologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 33 years. Dr. Porcari is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses CAPOS Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), Subarachnoid Hemorrhage, and Cerebral Arteriovenous Malformation. Dr. Porcari is board certified in American Board Of Radiology.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    38+ years
    Languages Spoken:
    English
    Accepting New Patients

    Richard Lichtenberg is a Radiologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 38 years. Dr. Lichtenberg is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Lung Nodules, Lung Cancer, Inflammatory Breast Cancer, Bone Graft, and Vertebroplasty. Dr. Lichtenberg is board certified in American Board Of Radiology and American Board Of Radiology. Dr. Lichtenberg is currently accepting new patients.

    Experienced in Familial Porencephaly
    Pediatric Radiology
    Experienced in Familial Porencephaly
    Pediatric Radiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English

    Jamie Frost is a Pediatric Radiologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 19 years. Dr. Frost is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Congenital Giant Megaureter, Bronchogenic Cyst, Lhermitte-Duclos Disease, and Subcortical Band Heterotopia. Dr. Frost is board certified in American Board Of Radiology and American Board Of Radiology.

    Showing 1-20 of 30

    Last Updated: 04/28/2026

    What is the definition of Familial Porencephaly?

    Familial porencephaly is part of a group of conditions called the COL4A1-related disorders. The conditions in this group have a range of signs and symptoms that involve fragile blood vessels. In familial porencephaly, fluid-filled cysts develop in the brain (porencephaly) during fetal development or soon after birth. These cysts typically occur in only one side of the brain and vary in size. The cysts are thought to be the result of bleeding within the brain (hemorrhagic stroke). People with this condition also have leukoencephalopathy, which is a change in a type of brain tissue called white matter that can be seen with magnetic resonance imaging (MRI).

    When should I see a Familial Porencephaly doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Familial Porencephaly doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Familial Porencephaly doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Familial Porencephaly doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Familial Porencephaly doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Familial Porencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Familial Porencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Familial Porencephaly doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Familial Porencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Familial Porencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Familial Porencephaly doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Familial Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Familial Porencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Familial Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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